Bumps In The Road

A couple of weeks ago, Becky had an accident in her home. She fell out of the Hoyer lift onto her feet then her knees.  A Hoyer lift is a type of sling on a pneumatic jack system. A handle is pumped up and down to lift Becky as she sits in the sling. This is how she gets from her bed to her wheelchair; from her wheelchair to the shower chair; and back into her bed.  It's always been an extremely safe method of getting Becky from one place to another.  But accidents happen to everyone, even to people who have very careful, well-trained staff taking care of them.  Becky fell forward out of the sling and onto the floor. She landed on her toes, bruising them badly. Falling this way also jammed the bones of her left leg together, breaking the femur about 1" above the knee.  It broke in the pattern of a "T", causing lots of pain....but no bruising or swelling. Becky also fell onto her knees, breaking the knee cap of her right leg. This leg swelled up a lot and was very black and blue very quickly!  

Her poor caregiver was in shock just as much as Becky was. They were BOTH crying on the floor when another caregiver came in to see what was happening. Becky said she wasn't hurt and she had stopped crying. They picked her up and placed her on the bed, phoned the on-call nurse and then made a second call to 911.  

Becky went by ambulance to the hospital. She normally flirts and falls a little bit in love with men in uniforms, but not this time.  She didn't start crying again until they got to the emergency room and she was transferred onto another bed.  X-rays were taken of her right leg and the doctor suspected a fracture but was not certain. They decided to admit her into the hospital as a precaution.  

Thank goodness for very good friends and caregivers. Our friend, Sylvia, stayed with Becky through the day and night. I rented a car as soon as the rental place opened and drove like a maniac 5 hours to Las Cruces.  Becky called me several times to check on where I was on the journey, crying through each conversation. By the time I reached the outskirts of Las Cruces, she insisted on staying on the phone with me and listening to me describing which street I was on, which building I had just passed, etc.  When I told her I could see the hospital, she said a pathetic little "yay".  We hung up so I could run up to the hospital. Poor girl had been crying for more than 24 hours straight with no break or rest.  
I stayed with her for the 10 days she was hospitalized. It was quite the adventure.

Becky Loves Her Papa

A couple of weeks ago, my wonderful husband accompanied me to southern New Mexico for a visit with Becky.  I'm going to try to describe the amount of excitement, anticipation and pure joy Becky expressed about her "Papa".  

During one of our nightly phone calls, Becky asked if Papa was going to be coming with me during my next visit.  I told her "yes, he is" and was treated to a long, happy shriek lasting at least ten seconds.  Sure, it's nice that her mom was coming to see her, but the REAL thrill was that Papa was coming.  

When Becky first met Frank, they formed an instant bond.  We had gone to Frank's restaurant following a Special Olympics Bowling tournament.  He treated her to a good supper and spoiled her with dessert. After eating, we loaded Becky onto her van...or rather, we TRIED to load Becky onto her van.  The wheelchair lift got stuck in mid-air.  We had a long wait for the "van guy" so Frank got into his truck and retrieved his Dallas Cowboys blanket (a truly coveted treasure).  He covered Becky and tucked the blanket into her wheelchair.  Becky felt so cared for and special...she talked about it for months afterwards.  

Over time, she was much more interested in talking with Papa on the phone than anyone else. She'd call me and ask "how's Papa?". If she could figure out he was there in the room with me, it was all over.  She HAD to talk with Papa.  Sometimes it is a challenge to get Becky to talk and keep up her side of a conversation; but not with Papa.  All of a sudden, she is full of questions and finding ways to make the call last longer.  They have a fun little game at the end of their phone calls where they keep saying goodbye to each other - louder and louder, sillier and sillier. They both love it!

Anyone who knows Becky knows that she is a terrific hugger.  When Becky hugs you, you feel it for hours! We have all learned to have Becky hug us with her right arm so that we can eventually get away.  If she hugs someone with her left arm, that person is going to be there a while.  Becky always hugs Papa with both arms.  

So, back to our last visit...  We arrived at Becky's home about half an hour before she was scheduled to get home from dayhab.  We made ourselves comfy with me at her computer doing a clean-up and Frank sitting on the sofa in the living room.  Becky came into the apartment and immediately saw my Sonic drink on the counter. "Mom!"  She wheeled over to me at the computer and gave me a huge (right armed) hug.  Lots of kisses were given and received.  I told her to turn around; that's when she spotted her Papa.  SHRIEKS! SQUEALS! "PAPA!!!!!!"   Crazy driving into the living room followed by lots of (left armed) hugs.  She didn't let him out of her sight until it was time for us to leave.  As we were about to leave, Becky gave Papa a special gift.  A stuffed bear wearing Dallas Cowboys uniform.  Yes, they have a strong, very special bond.

It's A Small World After All?

Becky's dream of going to Disneyworld is certainly well-timed.  

The state of New Mexico is making drastic budget cuts, like most states are this year.  Unfortunately, the state of New Mexico has decided that cutting back on programs for the poor and disabled is a great way to balance their budget.  How sad that our state leaders would go after citizens that are all too often "voiceless".  Culturally, many of the people who are directly affected by these cuts do not complain, do not access their government officials via letters or emails; they tend to not be informed about forums or meetings to voice their objections.  Despite having been involved in a very expensive lawsuit due to the way the state of New Mexico used to treat people with special needs, the state is cutting the budgets for people on the DD Waiver by 25% and in some cases up to 73%.   
http://www.sfreporter.com/santafe/article-5232-jacksons-legacy.html?current_page=1

In Becky's case, we are expecting major budget cuts that will force the company that provides her residential care to group their clients together.  Becky will no longer live in her apartment by herself; but will have a roommate.  Because the company that takes care of her is so small, options for roommates is extremely limited.  Luckily, Becky loves her future roommate.  He is a 73 year old man.  She sees him as a grandfather figure and loves helping his staff take care of him.  She gets him drinks of water, tells staff what he needs next.  He's a quiet man who needs help getting around.  He and Becky often spend Saturdays & Sundays together at each others' homes.  

Another way the budget cuts are going to affect Becky is through cuts to the Medicaid program for prescription drugs.  Luckily, Becky is a fairly healthy young lady who takes few medications. But the medications she does take are very expensive. We are going to be challenged to find ways to give her the medications she needs while maintaining her already tight personal budget.

Of course, like almost everyone these days, Becky's personal budget will be greatly affected by the state and national economy.  It's part of normal living.  And like everyone else, Becky will be making choices in daily activities to help her stay within her budget.  She'll have to choose which social activities are important enough to her to pay for the gas to get there....we're pushing for her to continue having an active social life by going to karaoke, bowling and out on a day every other Saturday, as well as church on Sundays.  But because she also goes to Dayhab 5 days a week and doctor appointments occasionally, her social life choices may become limited.  Her world may become quite small indeed.  

Going to Disneyworld will expose Becky to new people, new parts of the country, and new experiences.  It's very important that she sees there is more to life than what she sees every day.  Her trip to New York City opened her eyes and her mind.  She has become much more active online and has goals and dreams for her future.  Becky has also decided to become much more active in her fundraising for her trip!  She has been having me send out cookbooks that she made to some of her extended family members and is having a yard sale in September!  She is also planning on selling pizza by the slice at her Dayhab.

Any help she can get toward her goal of going to Disneyworld would be forever appreciated.

How Disneyworld Can Help Independence!

My daughter, Becky, has cerebral palsy and uses an electric wheelchair to get around. Her ability to talk with her family and friends is an ongoing challenge for her but we discovered a wonderful way to help Becky communicate better!  Travel and adventure!!!
Becky is a very happy, friendly young lady but has huge challenges in independence.  She grew up relying on others to complete all her self-care such as dressing, grooming, and for many years, even feeding. With much work and therapy, Becky was able to learn to use utensils to feed herself, help put on tee shirts, and brush her own hair and teeth.  But all of those tasks take an enormous amount of effort and energy.  Thank goodness for her loving and attentive staff at Milagro de Vida and Angelcare of Las Cruces, NM.  

Last year, Becky went on her first independent adventure with Hammer Travel when she went to NYC.  The process of getting ready for the trip, fundraising, and telling everyone about the trip brought Becky out of her shell.  She eagerly talked to whoever would listen, telling them about her trip to the Today Show, meeting Jon Stewart at The Daily Show, going to the statue of liberty, and going to a Broadway show.  
We've seen a difference in Becky since her trip.  She is braver, more adventurous, and willing to try new things.  And she talks so much more!  She calls me every day to tell me what she did that day at dayhab.  

So, today I asked Becky a few questions about her upcoming trip to Disneyworld.  
Me:   Becky, what are you wanting to do most when you go to Disneyworld?  
Becky:   I want to see characters. I like Goofy, Mickey, and Donald Duck. My favorite is Tinkerbell. I love her.
Me:    What is your favorite Disney movie?
Becky:     Hmmmmmm I don't know.  
Me:     You used to love Aladdin.  
Becky:   Yeah, but not anymore.  I love Tinkerbell movies now.

Disneyland Dream

Wow! It's been such a crazy, busy summer!  
Becky has decided she wants her next trip to be to Disneyworld! She is excited to go away on her own again and meet new people.  Becky loves making new friends, trying new things.

The trip she is wanting to go on is:

http://hammertravel.org/destinations/orlando-disney/

January 27-February 2, 2013

So here we are again, raising money for her trip! The Paypal button on this blog goes to her account and every penny will be used for Becky.  Thanks for helping us spread the word!

Becky and Robbie's Night Out

Becky called me last to tell me all about her evening with her long-time boyfriend, Robbie.  They went to karaoke at the ARC.  They talked with their friends who were there and had a fantastic time catching up on all the chisme (gossip). 

Then they got busy dancing to the music. Becky loves to dance in her electric wheelchair, using her joystick to move side to side and twirl around.  But her favorite way to dance is to hold onto Robbie's hands as they sway to the slow, romantic songs.  Sometimes he will lean down to let her put her head on his shoulder as they dance.

I keep encouraging her to sing at karaoke, but she would rather dance. Becky has a sweet singing voice that makes everyone smile.  But, actually, she makes people smile no matter what she's up to!

On Becky's List of Things She HAD To Do in NYC...Go to The Today Show

Becky had a blast in New York City! 

She got to actually live her dream!

Becky and her new friends got up very early in the morning to prepare for the big show.  Even though she took a couple of light jackets & a sweater with her, Becky had to bundle up with blankets & other people's coats while she was at The Today Show.  She's used to the warmth of the desert and the dryness of the desert air.  New York City's humidity makes that cold go deep into her body!  
 When they first arrived at Rockefeller Center, there were only a few people there...so they were able to get a good spot in order to see the hosts and anchors of The Today Show.  As more people showed up for the show, they came over to Becky and her friends to greet them.  Becky also makes lots of friends everywhere she goes.  All of the travelers with Hammer Travel had made signs the night before.  Becky's sign said "I Heart U Mom".   

Al Roker came out first and did a weather report. After the report, he came over and talked with Becky and her friends, shaking their hands. Later, more of the hosts and anchors came out and took the time to greet Becky including Matt Lauer and Ann Curry.  When asked who was cuter, Becky said, "Al Roker, he was neat".  Who was the funniest one?  "Matt Lauer".  Who was the nicest one? "Ann Curry".

After the show was over, Becky and some of the other Hammer Travel friends went to the Top of the Rock.  Becky had chosen that as one of the places she wanted to be sure to see.  She was simply blown away with how high she was. In her hometown of Las Cruces, NM the tallest building is 4 stories tall....she could not believe she was 70 stories in the air. Since there is a thick plexiglass wall around the edge of the building, Becky could see all the buildings in Manhattan and down to the street. "It was crazy".